Michaela’s Marathon Update


@MuscleOwl: A #great read on #determination from my #good #friend, the #AMAZING @KylaHollywood! ONWARDS… #marathon #fundraising #AllOrNothing

Originally posted on The Muscle Owl:

Having announced her Belfast marathon for the 21st June, Michaela now has an ever growing number of people on board who are ready to run, walk or sidestep a mile with her. Yet whilst this challenge is gaining ground, Michaela is simultaneously fighting another battle elsewhere. Unfortunately, that place is the Belfast City Hospital, and the battle is that of a perilously tricky chest infection.

kyla270315As many of you will know, last week’s four night hospital stay was interluded with her weekly appearance on the MuscleOwl podcast, and a spritely Hollywood vibe. Nevertheless, with the infection not responding to the Doxy, she declined sharply just a few days after discharge. Unable to pull in enough oxygen, harbouring a ‘light speed’ heart rate, and unstable body temperatures meant a sharp return was on the cards.

With Doxy now switched to levofloxacin (or ‘levo’ for all the cool cats), the…

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Being a part of the ‘Battle for number 10’


A #great blog piece by my #good #friend @RosemaryFrazer! #pushbounderiesandconquer

Originally posted on Scope's Blog:

RosemaryI’ve often watched political programmes such as Question Time and thought, ‘What sort of people apply to be in the audience?’ Well last night I found out at the Battle for Number 10 event on Channel 4 and Sky News.

I applied and was lucky enough to get chosen and got to put a question to David Cameron.

The audience were all gathered together a couple of hours before the programme began and we were all quite nervous and excited. I had many great conversations with people discussing our particular issues and sharing our views.

Why did I want to take part?

Despite there being 11 million disabled people in the UK, we hardly ever see disabled people in the media and our issues are seldom discussed by politicians.

As we head towards a General Election it is vital that all candidates are aware of the issues of concern to…

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[48] Miles


Go @KylaHollywood! #pushbounderiesandconquer #nothingwithoutcomminity :)

Originally posted on Life With Hollywood:

- Tomorrow carries something new. -

I think by now, and with another blog coming from my hospital bedside, we all know what a race it is to live with a neuromuscular condition. It’s a constant track of twists and turns. It’s a pure marathon, every single day. But it’s not a life I resent, I love living this life.

I’ve spent the last week sick, and the last three days in particular trying to regain my lungs from the grip of a chest infection that came out of one of my famous strange allergic reactions. This one happened at home, and a lovely medical molecule made me too sleepy, letting an infection fester without my knowledge that it was even there for almost two weeks.

But now, I’m beginning to pick myself up. I’ve got to. Why?

Because on June 21st I will face the most ridiculously…

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@RosemaryFrazer: Hot off the heels of her #BattleForNumber10 TV grilling of the Prime Minister about #disabled people playing a bigger role in public life, I had a #great time meeting up with my #good #friend Rosemary this afternoon! We had a #great time drinking some #tea, eating these tasty #cake and just having a proper catch up. #Cheers Rosemary, we must do it again! Take care and speak soon. #London #2015 #friends #disability #justiceforall #pushbounderiesandconquer

@JuppSarah @dandad @UNIT9 @mybloodyval @henrydinosaur @peterdufs @KylaHollywood: #DandADTraining | All #smiles with my #good #friend Peter after the #DandAD #Leadership #Series: #Immersive #Storytelling #event—featuring two #incredible #speakers (Valentina and Henry) of production company #UNIT9—last night. #Cheers buddy for a great time out!

I just wish our friend Michaela from Northern Ireland could’ve joined us too, as we both miss her so much. X

#inspired #London #2015 #events #advertising #design #creativity #makeithappen #LiveMoreDoMore #iamnotinspiringiamjustlivingmylife (at D&AD Studio)

@MDUK_News @JuppSarah @dandad @UNIT9 @mybloodyval @henrydinosaur @MuscleOwl: #Advocacy + #DandADTraining | Had one of most fantastic days yesterday!
In the afternoon, I went to #Parliament to attend the Muscular Dystrophy UK’s launch of the new report by the All Party Parliamentary Group (#APPG) for Muscular Dystrophy on impact of #NHS reforms on access to #rare #disease services. The launch went very well, and I hope we can now push on to get the treatment and care needed for all those with #neuromuscular conditions.
Later yesterday evening, I attended the #DandAD #Leadership #Series: #Immersive #Storytelling event with two incredible speakers (Valentina and Henry) of production company UNIT9! I found their talk absolutely #fascinating as I love #technology. I even got to try VR rugby on the #OculusRift as well, which was so much fun! A big Thank You to my #good friend Peter for joining at the talk too. :) See you next time D&AD!
#inspired #London #2015 #events #MuscularDystrophy #CareAboutRARE #HealthIsWealth #advertising #design #creativity #makeithappen #LiveMoreDoMore #iamnotinspiringiamjustlivingmylife (at D&AD Studio)

#Love this! Used this a part of some research for a project at university. #inspired #creativity #creative #ThinkLessDoMore  



Gabriel Dawe (Mexico) – Plexus

Originally from Mexico City, Gabriel Dawe creates site-specific installations that explore the connection between fashion and architecture, and how they relate to the human need for shelter in all its shapes and forms. His work is centered in the exploration of textiles, aiming to examine the complicated construction of gender and identity in his native Mexico and attempting to subvert the notions of masculinity and machismo prevalent in the present day. His work has been exhibited in the US, Canada, Belgium, and the UK. After living in Montreal, Canada for 7 years, he moved to Dallas, Texas, where he obtained his MFA at the University of Texas at Dallas. For the final two years of his degree, he was an artist in residence at CentralTrak, the Artist in Residency program at UTD. His work has been featured in numerous publications around the world, including Sculpture magazine, the cover of the 12th edition of Art Fundamentals published by McGraw-Hill, and in author Tristan Manco’s book Raw + Material = Art . He is represented by Conduit Gallery in Dallas, and by Lot 10 Gallery in Brussels.

© All images courtesy of the artist

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